Hey everyone. I wanted to share a quick little story. Yesterday I was trying desperately to get some dishes done that were overdue. :) However, it was very difficult to accomplish this task with Carter and Makenna hanging on my leg and pulling dishes OUT of the dishwasher. Reed noticed and asked them to come downstairs and play with him. Carter turned to Reed and said, "Dad, you can't MAKE me go downstairs!" I have to smile and realize...my son is DEFINITELY two! :)
An update on Spencer: He still is not nursing from me, but we are working on using a nipple shield right now. Hopefully that works out. We had his hearing screening at the hospital done and he failed on the right ear again. They then referred us to an audiologist down in Salt Lake City where we did additional testing. Spencer has a mild hearing loss in his right ear and normal hearing in his left ear. However, the audiologist believes it is just due to fluid and will resolve itself over time. If not, we have to see an ENT (Ear, Nose, and Throat doctor) to have a tube put in his right ear. They are going to retest his hearing in 4 more weeks to see if there has been any change.
More info: I haven't told too many people, but the doctors believe Spencer has a syndrome called Goldenhar Syndrome. However, from what I have researched it looks like he has a very mild case. Basically the right side of Spencer's face is underdeveloped and slightly smaller than on the left side. His ear is also smaller and you can tell his jaw and maxilla is smaller too when you feel it but isn't noticeable by looking. Unilateral hearing loss is characteristic of the syndrome as well as kidney and spine problems. However, we are hopeful and we have been to Primary Children's Hospital to look at his kidneys and spine. All looks well there so we are happy. We have received a lot of great news through the first month of his life. He is such a beautiful, happy little boy. It is great to have a wonderful baby. Only time will tell on the syndrome. He has not received a diagnosis right now. We love you all and miss you!
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My best friend's oldest daughter has Goldenhar's Syndrome. She's done VERY well and hasn't had many problems at all. She needed glasses as a very small child, she has skin tags by her ear and they've treated a lazy eye, but she's brilliant and healthy and adorable! If you ever want to chat with my friend about it, let me know!
Hope you are well! Miss you!
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